Undergoing an ostomy surgery can be scary at first. You may wonder how your life will change or what people will think. However, you'll be surprised to learn that daily life with an ostomy doesn't have to be much different than life without an ostomy. To help, here are some things to remember when preparing to adjust to the changes ahead.
Understanding What Your Ostomy Requires
Living with an ostomy means that there will be some changes in your day-to-day activities. You'll need to change your pouch, care for your peristomal skin, and be able to recognize any signs of a problem. These adjustments begin with understanding the type of ostomy surgery you need and how it will affect your bathroom habits. The following are the different types of ostomies that are performed:
- A colostomy is when part of the colon (large intestine) is removed or bypassed. Your surgeon creates an opening in the abdomen, and stool exits through the stoma into a colostomy bag.
- An ileostomy is when the small intestine (ileum) is redirected through the abdominal wall, bypassing the colon entirely. It's usually needed for conditions like Crohn’s disease, ulcerative colitis, or familial polyposis.
- A urostomy is when the bladder is either removed or bypassed, often due to bladder cancer, spinal cord injuries, or birth defects. A section of the intestine is used for a pathway for urine to drain into a urostomy pouch.
Living with a colostomy or ileostomy is similar in some ways, in that fecal matter will be emptied into an ostomy pouch instead of out of the rectum and anus. Stool consistency may vary between the two types, as digestion and absorption of nutrients depend on which part of the bowel was affected and how much was removed or bypassed. Your doctor or ostomy nurse can help you better understand what to expect when living with a stoma, regardless of the type of ostomy surgery you've undergone.
Challenges of an Ostomy
New ostomates may also need to overcome a few challenges. While there will be physical demands that involve emptying your pouch and caring for your stoma, most people struggle the most with the emotional and psychological feelings that come after surgery. Everyone reacts differently, and that's okay. The important thing is to remember that ostomies are life-saving surgeries, and you'll likely notice that you feel better physically and may not experience the same disruptive symptoms as before. In fact, after the adjustment period, many ostomates end up feeling like they have more personal freedom than ever before. It gives you control over your condition and, therefore, your life.
Still, having an ostomy can be difficult to accept. If you struggle to adjust to life with an ostomy bag, don't hesitate to talk to your ostomy nurse or doctor. They can refer you to a specialist or help you find a support group nearby.
Life With an Ostomy: What to Expect
Adapting to life with an ostomy can be challenging at first, but it's important to make sure you're doing what you can to stay physically and mentally healthy. The following tips can help you navigate daily life with an ostomy but always check with your doctor before making any drastic changes to your schedule. Remember, the key is to find what works for you, which might take a little time. However, with the proper care and support, you'll come to realize that life with a stoma is just as great (if not better) than it was before your life-saving surgery. To help, consider some of the following tips.
Follow Post-Op Care
The first few weeks after surgery are crucial for healing and adapting to your ostomy. Follow your healthcare provider’s instructions carefully, including how to clean and care for your stoma, when to change your pouch, and signs of potential complications like irritation, leakage, or infection.
Join a Support Group
Connecting with others who have an ostomy can be incredibly reassuring. Ostomy support groups—whether in person or online—offer a space to share experiences, ask questions, and gain practical advice from people who understand what you're going through. You’ll find that you’re not alone, and hearing success stories from long-term ostomates can inspire confidence in your own journey.
Learn How Different Foods Affect Your Digestive System
Just know what to expect with a few different types of foods. These intestinal reactions are normal but could be more noticeable with a stoma. For example, the following reactions are often paired with certain foods.
- Gas — Beans, asparagus, broccoli, Brussels sprouts, cabbage, cauliflower, onions, carbonated beverages, beer
- Incomplete digestion — Apples, cabbage, celery, corn, dried fruit, mushrooms, nuts, pineapple, popcorn, seeds, skin from fruits and vegetables
- Thickened stool — Bananas, cheese, rice, potatoes, peanut butter
- Thinned stool — Fried foods, grape juice, high-sugar foods, spicy foods
- Increased odor — Asparagus, broccoli, beans, eggs, fish, garlic, onion, peas, alcohol
Individuals with a urostomy may also have increased odor in output when eating asparagus, fish, garlic, and onion. Luckily, plenty of ways to manage odor within your ostomy bag exist. It just takes a bit of preparation. You can also adjust your meals based on whether you're eating in public or in situations where you want to take some extra precautions.
Remember to drink plenty of water regardless of what you eat. Hydration is important after undergoing ostomy surgery and can help ensure your intestinal tract is functioning at its best.
Master Emptying Your Stoma Bag
At first, emptying your ostomy bag might feel overwhelming, but it becomes second nature with practice. Try to empty it when it's about one-third full to prevent leaks and bulging. You can also empty it before engaging in physical activity, sports, or intimate moments. Sitting on the toilet while emptying can help minimize mess, and using deodorizing drops can help manage odor. However, the type of ostomy bag you have will also impact how you empty it. Some pouches can be drained, while others need to be removed and replaced. Talk to your healthcare team to help you choose the best option. Over time, you’ll develop a routine that fits seamlessly into your day.
Stay Active
Exercise is not only possible with an ostomy but is encouraged. After giving yourself time to heal, maintaining an active life can help you build confidence and stay healthy. Talk to your doctor before starting any exercise regimen. Once you're cleared, begin with light activities like walking or yoga and gradually work up to more strenuous exercises. If you participate in contact sports or heavy lifting, consider wearing an ostomy support belt to protect your stoma. Regardless, always listen to your body, and don't push yourself too much.
Keep Things Private (or Don't)
Deciding how much to share about your ostomy is entirely up to you. Some people feel more comfortable keeping it private, while others find that being open about it reduces anxiety and strengthens relationships. If you prefer discretion, high-waisted clothing, wraps, and patterned fabrics can help conceal your pouch. If you ever feel so inclined, remember that talking about your experience can help normalize ostomies and educate those around you.
Prepare to Return to Work
Going back to work after ostomy surgery may feel a bit scary, but with the right preparation, you can return with confidence. Pack a bag to hold all the ostomy supplies you'll need throughout the day, as well as a few extras in case of an emergency. When at work, plan for bathroom breaks to empty or change your bag accordingly.
If you have concerns, talk to your employer about possible accommodations to help you empty your bag privately. Many people successfully continue their careers without issue—your ostomy does not define your professional abilities.
Have Fun With Ostomy Fashion
Your wardrobe doesn’t have to change just because you have an ostomy. High-waisted pants, stretchy fabrics, and flowy tops can help you feel comfortable while keeping your pouch discreet. There are also plenty of specialized ostomy wraps and support garments that provide extra security and confidence. Experiment with different ostomy fashion styles until you find what makes you feel your best.
Learn to Navigate Intimate Moments
Sex and intimacy with a stoma can feel daunting, but with communication and self-confidence, it can be just as fulfilling as before. If you’re feeling self-conscious, try wearing an ostomy wrap or pouch cover to keep your bag secure and out of the way. It's also important to prioritize open communication with your partner, as sharing your feelings and concerns can help build trust and make you more comfortable. Remember, your ostomy does not define your desirability or ability to have a fulfilling romantic life.
Many aspects of your life may change after surgery, but that doesn't mean quality of life decreases. To help you feel your best, visit Byram Healthcare and browse our various ostomy supplies today.
